{"schema":"hottub-news/story/v1","story":"st_qee5xebs6sqck2spyyxq","title":"Organizaciones piden al Minsal analizar financiamiento de tratamientos para enfermedades poco frecuentes","title_en":"Organizations ask the Ministry of Health to analyze the financing of treatments for rare diseases","outlets":1,"brief":null,"page":"https://hottub.news/stories/organizaciones-piden-al-minsal-analizar-financiamiento-de-tratamientos-qee5xebs6s","count":1,"items":[{"id":"n_qee5xebs6sqck2spyyxq","seq":517217,"kind":"article","title":"Organizaciones piden al Minsal analizar financiamiento de tratamientos para enfermedades poco frecuentes","title_en":"Organizations ask the Ministry of Health to analyze the financing of treatments for rare diseases","url":"https://www.latercera.com/nacional/noticia/organizaciones-piden-al-minsal-analizar-financiamiento-de-tratamientos-para-enfermedades-poco-frecuentes","summary":"En la antesala de la discusión del Presupuesto 2027, representantes de organizaciones de pacientes llamaron al Ministerio de Salud a evaluar el financiamiento de tratamientos para enfermedades poco frecuentes (EPOF) como la acondroplasia. La intención de las familias es terminar con la judicialización de casos. Para dar cuenta de esta petición, las organizaciones se reunieron el pasado 27 de septiembre con la ministra de Salud, May Chomali . Fernanda Cornejo, presidenta y…","published":"2026-09-28T20:03:33Z","seen":"2026-09-28T20:28:37Z","lang":"es","country":"CL","source":{"id":"kite-latercera-com-1bd179","name":"latercera.com","domain":"latercera.com","outlet":{"wikidata":"Q2601390","name":"La Tercera","type":"newspaper","country":"CL","designations":["daily newspaper"]}},"via":"kite-latercera-com-1bd179","topics":["nacional"],"authors":["José Navarrete"],"entities":[{"id":"Q1519799","name":"ministry of health","type":"org"}],"image":"https://www.latercera.com/resizer/v2/MMI2DV6DORHVBO4IBKQ6GMAMVQ.jpeg?auth=6f8a24a818e521a842006d9e82fe2f3ce8938a8e6aa5192406162f09a33b4bc4&height=960&smart=true&width=1280","story":"st_qee5xebs6sqck2spyyxq","category":"health","category_p":0.7799999713897705,"sentiment":"neutral","tone":-0.15000000596046448,"political":0.5899999737739563}]}